A week downtown

This week I was back downtown, not exactly where I use to live and love, but close enough to everything. Malls, the metro, tunnels, restaurants, the Montréal light festival, and I even saw people zipping by my window. (literally, there was a zip line set up).

This getaway wasn’t fun, it was liberating. To wake up in the morning, see it’s snowing outside and still be able to go get a tea, food, do some shopping, get a haircut, do the little things I once took for granted, and not having to worry about how I’ll get there was such a relief. I was rid of anxiety for the first time in a long time. And it didn’t hurt to sit by a fire and write, and then get back to a clean room. Fun, I don’t know. Do you enjoy going to the pharmacy? Maybe not, but being able to do it sure is nice.

My kids even passed by and I took them to the pool, to a chocolate shop, a nice dinner at Baton Rouge, and then dessert at chocolate favoris. And I never once worried about accessibility. Such relief.

But this getaway also had an unforeseen result. In that I realized I’m no longer a city girl, and just how much I have grown. For years after moving away from the plateau, I longed to be back there. In my well located apartment on prince-Arthur, surrounded by restaurants and anything else you could possibly need, and all at walking distance. 

When we first left downtown to live in the suburbs, my health started to decline. For a long time I associated the two together. I blamed the suburbs for my loneliness, for my illness. Even though I knew they weren’t linked. But now I have grown to love my little community, my neighbors, my little suburban home. People dressed in their best pair of jogging pants while they shovel their driveway or walk their dog. Sometimes I even dream of living someplace more secluded. I long for fresh air, mountains, trees, and the quiet of nature. 

I am not who I once was, and that’s ok. I will always look fondly on my time in the city, but I’m ready to let go of the city girl.

This getaway was meant to re-emerge myself into Montreal, but it turns out it was  more of a chance to say good bye. And I’m good with that.

 

Brushstrokes

This winter has been hard. It snowed early and (for disability reasons) I found myself trapped in the house sooner then imagined. I have been, basically, hibernating since November. 

The lack of sun, and human contact has turned me into a hermit.
I have become detached and depressed.

Last winter I painted on a regular basis and it kept me sane and content. Happy even. This year I hadn’t lifted a brush … until someone asked for an original.

This painting has been my saviour these past few weeks.
It’s like finding purpose again. A weight lifted and I stood

I’m not sure exactly what you want, but be certain lots of thoughtfulness has gone into it.

I am not ready to reveal it yet, but also anxious to do so.
So here is a sneak peak of an extremely happy, colourful, abstract painting. Shown here, in its entirety, with lack of color. 

These brushstrokes
Are part of many, of thousands
Yet they stand out, they are unique
Destined and impulsive
And inspired by color.

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Freedom

I have been somewhat trapped inside the house since about November. Venturing out only on a few occasions. Dinner with friends, or with family, and a trip to the art store. 

I have a progressive disease and …. well….it’s doing what it does. It’s progressing. It feels like it’s progressing quicker but that’s probably because I have less endurance left. In the beginning I could walk / stand for hours and hours, so loosing a few seconds was barely noticeable. But those seconds have added up throughout the years and I’m down to a few minutes. I can notice the minutes getting less and less, week by week. Dean has had to carry the weight I can no longer handle and I feel like a burden, even though no one has ever complained. 

I was scared (again) that I could no longer lift myself up, mentally and physically. 

Of course the weather has played a major role. Every time I felt the strength to venture out, we would get another snow storm and I retreated to my safe spot. My home. 

So I decided to venture downtown. To spend a few nights in a hotel linked to all the underground, snow/ice free, tunnels. To see if I can live independently again, once accessibility is no longer an issue (sort of). 

I had been drowning, let’s see if I can learn to swim again.

 

The view

 

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I had this peaceful view for a very short time when we stayed at a chalet up north,

I was able to ride my wheelchair to the bottom of the hill.

Then use my cane to walk very slowly and very carefully to the end of the dock,

Where I planted my tripod and fell to my knees.

I stayed there for a while

Watching the ripples in the water, and the trees gently swaying 

Listening to the frogs croak and the leaves ruffling in the wind

And then angling my camera for a shot

The joy, peace, and serenity from this time were intertwined with the sadness, fear and realization of my situation. It truly was a beautiful, thoughtful and poignant moment

….

I really hope this wasn’t my last time …

At the end of a dock

The truth

I am sick and I am scared.

When one of my children is doing something that annoys the other, I tell them “just ignore it and they’ll stop”. I have been using this reasoning with MS as well. I’m trying desperately to ignore it. And the worst I feel the more I dream. I search travel spots, I make dinner plans, I get a dog!, I plan for an MS free future. I feel both in denial and hopeful. My upbeat attitude can appear to some as “I’m doing better” and I guess in some aspects I am. I’m no longer letting MS (argh…hate those letters…back to pickles) I am no longer letting pickles stop me from dreaming, from making plans. And that is good, that is better. 

But the truth of my health is I am not doing better. I am getting worst. I’m just ignoring it even though I am reminded with every step I take. My legs are stiff, so stiff. The spasms are more frequent, my balance is completely off. And the fatigue is constant. CONSTANT. It never goes away, it just gets worst. I know it is there, all I can do is nap. And I don’t talk about it because then I am no longer ignoring it. But it is there. It is the big fat elephant in the room. And I’m just hoping it doesn’t crush me.

 

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Thank you

BA25834C-5905-468E-9426-0B70DBAE1B18I feel like I need to mention this again to my friends, although I’ve said it in person (I hope I did), but it should be in writing as well. Thank you for travelling with me. Thank you so much. Thank you for lifting the dam wheelchair for me, making it seem like it wasn’t a pain in the ass. Thank you for carrying it up stairs, thank you for helping me in & out of the pool, thank you for carrying things for me when you saw I was having a hard time. Thank you for making spots that would of been inaccessible to me, accessible. Thank you for your patience. Thank you for taking the stress of researching areas for accessibility away from me. A weight was lifted and  it made it possible for me to save my energy for travel. For discovery. 

One of you told me you didn’t realize just how constant my disease, my symptoms were. It is there every day, with every step, the struggle and fatigue constant. Every place I go I have to worry about accessibility. It is overwhelming for me. It makes me hide out so I don’t have to worry about it. It never stops. I was both relieved that someone understood, and scared that it would  push you away. That it would become overwhelming for you as well. Travelling with me, around town or abroad, is not easy. 

I wouldn’t of been able to do this trip without you. I may not have been as integrated as you thought I would of been. But I was, fully integrated, in my own way. 

I don’t know how many more trips I’ll be able to do, and if this was the last, I am so happy I made this one with both of you. The wonderful memories of roaming sheep, the sound of waves, the beautiful landscapes, the great company, the window shopping, the blue skies, the starry nights, will stay with me forever.

Thank you

The pains of fatigue

Did earlier versions of humans hibernate?

Because my body feels like it could hibernate 

I want to stuff my face with food,

crawl into a comfy duvet

Lay my head on a fluffy pillow, and fall asleep

Waking up weeks from now 

having magically lost weight and feeling rested

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An ode to

My feet

Are banged up, sore, bruised, 

and sometimes (after a stroll in my art studio) stained by paints

I feel them burning from dryness, from neglect

I see scars and bruises and all the stories they could tell

The stories of the miles I have walked, the adventures I have lived, and the places I have been

The challenges, the obstacles, and the struggles I have faced

They’ve gotten callouses 

from wearing heals, 

from standing too long, 

from wearing shoes that are too small, to shoes that are soaked through,

from walking for hours, for days, for years

They’ve been bruised from stepping on a nail,

They ached from walking on gravel

from walking barefoot so many times

I’ve felt my skin burn as I walked on hot pavement 

I’ve had sand, dirt and grass between my toes 

from roaming beaches, deserts, gardens, and fields

I’ve ran through grassy fields, and slipped on mushroom patches

I’ve dipped my toes in puddles, streams, lakes, and oceans

My toes have been broken, my feet have been bruised, 

they’ve bled, but most importantly, they’ve healed

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Hello Me!

The kids are away at sleep away camp this week. And of course I miss them, and of course I don’t!

My job as a mother has been to worry about my kids. It’s exhausting. From how much and what they are watching on tv, making sure they go outdoors, using sunscreen, the proper sunscreen, wearing helmets while riding their bikes, making sure they eat their vegetables, making sure they get enough sleep, look both ways before crossing the street, that they are kind but not push-overs, that they are growing up to be independent, reliable, smart, empathetic members of society, as well as worrying about too many other things, but mostly that they feel love. I don’t remember not being worried. 

But the kids are away this week. It’s on the camps shoulders to worry. Obviously I am worried about them, but it’s on a much different level. And as the worry dies down, I find myself again. Staying up too late painting, sleeping in till noon, eating when I’m hungry, having the music way up high, cursing (cause I can), watching scary movies, and other things not so kid friendly. 

I didn’t notice how much I missed this till now. Spending the summer with kids is great, but so is spending this week with myself. 

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Painting by commission.

Commissions Accepted

I have mentioned in previous post/blogs that my painting style has changed throughout the years due in part on my state of mind and my physical ability. This has also affected the amount of painting I have been doing lately. Because of this prices are going up. Knowing  I could never reproduce previous paintings, and that future paintings may be few and far between, they have become more valuable … to me. They are a reminder of who I was, how I felt, and how I have changed

As a result I feel my inspirations and motivations have grown.  I sketch, I take pictures, I dream, and I am overflowing with passion.

So if ever you see a sketch or a picture you would like to have as a painting. Let me know via private message and we can discuss size, colors, price and any other details that may be relevant.

A sketch/draft will be shown before any painting begins. And if we eventually agree, I will put my soul into it, for how ever long it takes me.

Thanks for your support,

CARO

Included are some sketches from the last few months….