I use to love cooking

Not sure what to eat? How about a head of lettuce, miam miam 😋
Throw in some cherry tomatoes for a kick!

I’m kidding and I’m not.

I rarely feel like cooking now and having pre-washed and prepped fresh veggies on hand is super helpful. It’s not creative, it’s actually quite dull, but it’s healthy and filling.

I once thought of becoming a chef and opening up a restaurant. But that seemed like lots of work so I thought of opening up a catering company instead.

That idea quickly vanished when I had kids.
Now, I don’t want to cook nothing.

I feel incredibly guilty and like a terrible mother when I say this, but cooking for kids has sucked the joy of cooking right out of me.

It started when they were babies. They obviously can’t help, they can barely get the food into their mouths, so they aren’t going to help you chop vegetables or clean up afterwards. I had to prepare their meals, 3 times a day, everyday. And it was very dull food. I’m not going to serve roasted stuffed chicken breast with a sauce of creamy digonnaise sauce reduced with white wine, a side order of sautéed spinach and crispy garlic home fries. They aren’t going to like it. Trust me I’ve tried, anything with spices and flavour they would throw back in my face. I could of kept trying, force them to refine their palate. I could of continued to spend over an hour preparing fancy meals while simultaneously taking care of kids. Exhausting myself to only have it thrown back in my face and deal with a hungry crying baby while also trying to eat my portion before it got colder. And sometimes I would get a phone call from Dean saying he’ll be late. I would sit there with my fancy meal going cold, half of it on the floor, a crying baby (then 2) and a mountain of dirty dishes and wonder “why am I doing this to myself?”

So the meals got simpler, quicker, plainer, kids would eat, no tears were shed (most of the time) and I fell into a routine where I just cooked for the kids very dull and boring palate. Everyday, 3 times a day. Sometimes (if I had the energy) I would also make something for the adults to eat. Something fancier, more flavourful, something you could actually crave. I would try and get the kids to try it, sometimes they would and spit it out, sometimes they wouldn’t even try it. But it got tiresome. 2 separate meals, piles of dishes, a floor and kids to clean. So in order to conserve my energy I almost never cooked anything I actually craved. Meal time became something I almost loathed.

As they got older they would accept more ingredients into their repertoire. After 10 years Audrey is much more adventurous. But my desire to cook has almost completely dissolved by now. I’m exhausted, mostly from coming up with meal ideas. You want to know what it’s like to be in a relationship/family. It’s wondering every day, multiple times a day, what people want to eat. I miss not having to worry what everybody else wants, and just doing or eating what I want. Eating paleo doesn’t help either.

So I grab some romaine lettuce, some baby carrots and just stuff my pie hole.

IMG_3966

A germaphobe in the making

Am I a germaphobe, not quite but I’m right on the edge.
Do I like things clean, sure. Am I constantly cleaning, no.
Do I run away in fear when someone is sick, no but I would if I could.
Do I use those antiseptic machines, yes … every time I see one.
Do I hug my family when they’re sick, I try not to. I would go live somewhere else for the duration of their illness if I could.
Do I feel good about that, no.
Do I fear sick people, yes. I hold my breath, I panic, I try to get as far away as I can. I look for antiseptic, I wash my hands over and over, I cover my face, and I pray I don’t catch it (not to god but religion is a blog for another time).
Was I always like this, not at all.

Why, because I have MS which is a neurological autoimmune disorder. I get sick and my immune system goes crazy and kills everything, including the myelin cover protecting my nerves. And there’s no way to fix it. I woke up once with a slight fever and I was paralyzed from the waist down, I could move my arms but barely. It took me 3 weeks before I was able to leave the house. (This is years after being diagnosed)

I take medicine to relax my immune system (let’s call my immune system Joe). So if I get a cold, “drugged out Joe” just relaxes. “dude, we’re being attacked, I should totally do something about that”. But Joe doesn’t do something about that, or at least he’s in no hurry.

I’m bringing this up, because I just spent the last week with a cold feeling TERRIBLE, barely able to walk, unable to paint, unable to cook (not that it matters because I can’t go to the grocery store anyways), barely able to focus, and most importantly unable to care for my kids. This.. f-ing cold is starting to pass and so I can focus again (hence write) but I’m still sick (hence really grumpy and ranting).

I would love to stop taking these meds so I can get over colds quicker . LOVE! But then I remember why I’m taking them. Because I went from being a healthy, vibrant, energetic, active woman….to being PARALYZED by the flu….PARALYZED! I fear I could wake up one day and be paralyzed NOT because of the flu. This “choice” about whether or not to take the meds didn’t feel like much of a choice and it wasn’t done without contemplation. It’s also not the only thing I’m doing (Walhs diet/lifestyle, physiotherapy, chiropractors, EMS, energy stones, aromatherapy, meditation, supplements, vitamins, probiotics, …) nor is it the only thing I’m contemplating. (stem cell transplant for people with MS?).

I’m not angry, I sound angry, sometimes I might be angry. And I’m not sad, sometimes yes but mostly no. I’m just tired, so so tired, overwhelmingly exhausted worn out tired. I just need to vent sometimes. I am a frustrated warrior.

And obviously I need to avoid germs.

IMG_2494

 

Why I decided to start a blog

Blog entry #1

Why I decided to start a blog.

Aside from ” it’s what all the cool kids are doing nowadays”, I thought it could be somewhat therapeutic for me. A few years after I was diagnosed with MS I got pregnant and then my life completely changed. I became a mom, my responsibilities changed, my body changed (therefore my wardrobe changed), my health changed, I had to stop working, I was dependent on someone else which was (and still is) really uncomfortable, and we moved to a new neighbourhood so my entourage changed (friends, restaurants), It was A LOT of change all at once and I felt incredibly lonely. I became somewhat withdrawn and closed off more and more over the years. I love my kids and our house but it came at a price. I lost myself.
This is me trying to find myself again. Or I guess redefine myself.

My husband (as well as others) have recommended I go to group therapy (always nice to hear, but I know it comes from a place of concern and love), and I even thought of getting a dog.
But I don’t like large gatherings or the idea of opening up to a bunch of strangers (face to face). And as to getting a dog….well I know the kids would love a dog. And having the quiet non judgemental unconditional love of a dog to keep me company during the day would surely be therapeutic. But I do not (and I can’t stress this enough), I do NOT want to pick up poop or be woken up at 5am cause he needs to “go”. My unwillingness to clean up dog poop, and my need for a good night sleep, are far greater then my need for emotional therapy….blame the almost OCD clean freak in me. Ain’t gonna happen.

So, a blog it is.

Regardless, after some soul searching I realized I don’t feel lonely
1. Because I have a great husband and two sometimes adorable kids.
2. Because I’m a big time introvert. So time to myself is awesome.
3. Because I have some great friends I can call anytime, I don’t, but I know I could and that brings me great comfort. I don’t have many friends, but the ones I do have are awesome.

What I do feel is lost.
1. Because I can’t let go of who I was.
2. Because I can’t let go of what I wanted.
3. Because I can’t figure out what I want.

So I figured if I start a blog I can give others a glimpse of who I am outside of the MS and BECAUSE of it. And hopefully find myself in the process. It has already started to help since I know I want to paint, I want to write, and I want to share…from a distance.

Sometimes I draw or paint in order to express myself. But my art is mostly abstract so my thoughts can often be … misinterpreted. But there will be nothing abstract about putting pen to paper, or fingers to keyboard in this case. I am not who I am. Which is occasionally my inspiration for my “art” (things aren’t always as they seem). I am not “the sick friend”. I want to change that perception, play a different part in your lives. I get it now when an actor wants to leave a role in a hit show. I want a new role. I am more then “the girl you know who has MS”.
I’m also a fucking mess 😉

So here I am, cautiously revealing myself…..IMG_2049