F-U SPMS. F-U COVID. And F-U freezing cold.
“Ain’t no power in the verse gonna stop me.”

F-U SPMS. F-U COVID. And F-U freezing cold.
“Ain’t no power in the verse gonna stop me.”

Has lost meaning these days. Most of the time I don't know what day it is, nor the time. It is of no consequence to me. I eat when I am hungry, I sleep when I am tired, and I do things I love in between. Sometimes I'll "do my duty" and tell the kids to do their homework and they reply "but it's Saturday?", and I laugh.
I have been very sick the last 4 years. My health seems to be declining at a quicker pace. From years apart, to months apart, to weeks apart, ... I feel worst. I am anchored, disconnected, and numb. I want to fly, to soar, to roam, to rise and fall, freely. I want to live as I was meant and profit from my strength. I want to belong.
I try very hard to focus on the positive, on what I still have, what I can still do, and what I've accomplished. I carry with me memories, the good and the bad. The lessons learnt give me strength as I embark on this new path. A path less travelled and meaningful in its own way . And I become much stronger the weaker I get.
The signs The dates The numbers The visions The moments that made me hesitate The colors The words I've heard myself say the prophet, the Alchemist, the elements, the desire to feel wind on my skin, to be weightless, the urge to fly, The picture I picked up. The woman at the top of the hill, seeing my reflection. The call from the east, It all says, Take a leap of faith
To paint To hike To walk To read To write To try new foods To take pictures To carry equipment To make my own path Trees Sky Clouds Sun Light Shades Colors The earth under my feet Fresh air in my lungs Having water around my waist Warmth on my chest and sun on my face
If I can't BE one of the elements, then ... I will connect with them more I will quench my thirst with water, I will fill my lungs with air, And I will feel the weight of the earth as I sink into it
I was wind And I got bored Up there, just changing speed and temperature Filling up with water, then letting go I wanted more So I came to earth. To experience weight To experience time To yearn to be weightless To want to roam again, freely To loose my fear of flying, and return to my roots
I am in the process of converting my art studio into a wheelchair accessible bedroom/art studio. My big art table is being converted into a big art desk. I’ve purchased electric blinds (since I can no longer reach the curtains). I’ve purchased an electric bed to help me rise (double bed, so I can have visitors ;). I’ve cleaned up the closet (was storage) so I can fit my clothes, my family painted the walls (the walls still had the color from when we moved in), Dean cut out space in my art supply shelves so I could push in a dresser. The space is coming along. It is a very weird process. I feel unable to cry because it’s a really nice space (for myself anyways), but I am also unable to smile because of the fear, the sorrow and the motive behind the change. I feel … lethargic.
My favorite part of the process has been going through my stuff (to organize) and finding objects I’ve collected throughout the years hoping to cover them with paint. New ideas have been popping into my head, and I feel an upsurge of creativity and desire inside me (something I had lost in the last couple years). I feel more awake and aware again. It feels good to WANT to paint again.
Today is the anniversary of my fathers death…or rather the last time I ever saw him. He passed away from pancreatic cancer during the night of October 11th 1987. I was 11, he was 42.