I like to take pictures, to process my surroundings, to find a remote area and connect with the earth while leaving nothing behind but footprints that will disappear with time.
And I am grateful that, throughout the years, I’ve had the opportunity to roam many beaches and deserts. I have felt grounded and levelled as my feet have sank into the sand and I found balance.

But on this trip, on this bucket list item that was meant to distract me from my new reality, I was restrained, disconnected from my surroundings, and constantly confronted by my disability.

I went to the beach with my family, and I felt the sun and sand on my skin.
I was somewhere breathtaking that many will never see, and I am very grateful for this.
But I had to be carried, and when I couldn’t be carried anymore I crawled.
And as I crawled, I dug my fingers into the sand, and I cried.
I cried from joy, from pain, from sorrow and from fear.
I cried from comfort in connecting with the ground,
I cried from mental and physical exhaustion,
and I cried from grief.

 

Over the years I have found joy in watching my loved ones enjoy the things I once enjoyed. But as my participation and presence diminish, as I stay behind and the sideline gets further away, as my body decays, as I struggle and as I disappear;
I long to see. To be. To feel alive.

On this trip I left trails where I crawled, tears where I cried, I let myself fall off a ledge, I slid down a hill, I bled, I bruised, I fell, and every time I found a way to get back up. I tortured myself to follow, I felt guilty for holding people back, for needing to be picked up, and for needing to be held steady. My family says they don’t mind, but I do.
I feel my path coming to an impasse,  that time is limited, and I’m frightened to tears by the thought of what is to come.

But other then that it was lovely….