Journey

The purpose of this trip wasn’t simply to spend time with friends. But also with myself.

To discover who I am, to find parts of who I was, and to be who I wish I had been, even if just for a brisk period.

It was a journey about finding strength within. Even though I have people surrounding me, I am alone in this journey, in this body, in my mind and soul. I needed to find the strength within to lift myself up, to push myself forward even when it’s hard, when it hurts. I needed to find purpose, I needed to find that voice in my head that tells me not to give up, to keep fighting, I needed to find some glimpse of independence when I feel myself fading.

Lately I have been inspired by the dark, or rather the dim light within. I feel myself grasping at what little light I can see, at what little hope I feel, at what little strength remains. So on this trip, on this journey, it was no surprise that I found myself spending most nights starring at the stars, the moon, the roaming clouds, at the dimmest of lights.

 

I planned a lot for this trip, I thought long and hard about, if I only had a few moments left, how would I want to spend them. Trying, fighting, living is what came to mind.

So when I noticed online that our villa had a path down to a beach. I knew I was going to hike down this path, I knew months before I ever did it. I knew I had to. And I did. It was a humbling, empowering,  frustrating, prideful, angering, beautiful and awakening moment.

 

Of course I took my wheelchair with me, I couldn’t see any other option. But because  the road was so rocky I couldn’t use it as it was intended and instead used it as a walker, the weight of it dragged me down. And on the climb back up I had to push it with all my might. I swore, I sweat for the first time in years, I struggled, I took my time, I carefully placed my right foot forward as I dragged my left and I found my balance with each step. I found my inner voice, I told myself that I wasn’t going to let MS beat me, I told my wheelchair “you’ve carried me on many occasions, now it’s my turn”. And most importantly I didn’t give up.

That descent, the climb back up was a metaphor for my struggle with MS, a metaphor for life. Don’t quit…

Even though my legs are sore and broken, even though my balance is off, my soul is at peace. 

 

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As for the rest of the voyage I woke to the sound of waves and wind. To the sound of sheep and cow bells. To a voice telling me a new day was beginning. That new opportunities lay ahead. I would open my eyes and be greeted by light.

This moment, this journey, completes me. I would not be who I am without it. I was guided there and it spoke to me. I can breathe again.

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